Tired of Being Tired

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I am so tired of being tired. All I do is sleep, literally. After the kids leave for school, I go back to bed, and my husband’s the one who takes them out to the bus stop. I go back to sleep, but in the living room, in our recliner. Some mornings I’ll stay up for a little while, messing around on the computer or whatever, definitely not doing the things I should be doing, the housekeeping, mom and wife stuff I should be doing, and so much more. Instead I sleep in the chair for most of the day and sometimes I’ll get up and go to the bed once the kids are home and sleep there, it’s awful. I’m literally always tired.I have two auto immune diseases, I’ve been diagnosed with psoriatic arthritis, the psoriatic part causes plaques of psoriasis and the arthritis part attacks small joints in my body. There’s more to it than just that, but I’m not going to go into detail right now. The point is, it’s been proven that people with auto immune diseases, including psoriatic arthritis, often have Chronic Fatigue Syndrome. The doctor I saw for three and a half years before she left town was excellent, Dr. W,  and she’s the one who helped me discover that this was most likely part of my problem with being tired. She also had me do sleep studies, testing for narcolepsy, they came back negative, but when a new sleep doctor came to town, she had me go see him for a consultation as well and he wanted to retest me, repeating the narcolepsy sleep study, but he wanted to score it himself. I never went in for that study. I just couldn’t do it again. I struggled with all the ones I’d had prior, terrible anxiety, not being able to smoke, and yes when you smoke that’s a big deal. I recently started seeing a new psychiatrist and he’s also a sleep doctor, and he told me that there is a such a thing a s Narcoleptic Syndrome, where the person experiences many narcoleptic like symptoms, but don’t have enough to pass the test for it. I fall asleep on my feet sometimes, uncontrollably, I just fade out…. I do it in random places at random times. It’s not all the time, it’s just sometimes. I also get so tired that I just cannot keep my eyes open anymore and I literally have to close them or I know I’ll fall out. It is awful. I’ve been on Dexadrine before, which is basically legal speed, and while it helped at first, the effect wore off because of the damage I’ve done to my body by being an addict, my tolerance has grown insanely high to medications. So it doesn’t work on me like it does others. Plus it was causing vocal and motor tics. So I’ve been off that for a while, but it’s hard. I know that being depressed does not help this situation, and I also know that not eating right is not helping this situation and that’s not anyone else’s fault but my own. I need to learn to start being a big girl, even though I often dread it. This tired all the time thing though…. there’s got to be something. I know, I know, people are gonna say exercise, eat right, take vitamins, etc. A lot of this stuff though, when not having been done regularly in a long time or ever, is much easier said than done. All of this takes motivation, and that, well, that’s a whole other topic, but I am definitely lacking it. Anyway, I just felt like getting a little steam out, lol, thank you. ;-p 

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2 responses »

  1. Wow. That’s terrible!I feel like I can really relate. I have sleep apnea and terrible insomnia. I average about three hours of sleep per night. I try to nap during the day for about an hour, if I’m lucky, but I’m tired all the time. I take Nuvigil and Adderall to keep me awake and I take a ton of things to get me to sleep at night, but while they get me to sleep, they don’t keep me asleep. It’s very frustrating. I find myself falling asleep sitting in doctor’s offices, at red lights, all the time. I hate it. I hope you find an answer to your problem. I hope there’s an easy solution to it somewhere.

    Liked by 1 person

    • Thank you. I was on Dexadrine for awhile, but I was having side effects. They wanted me on Provigil, but insurance said no. They’re not sure exactly why I’m so tired, but I fall asleep in odd places too, it does suck.

      Like

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